Where the heck have you been?
So it's been what almost 4 years since my last post. In those 4 years I have received multiple e-mails from people with various questions about MS and my other illnesses. I have to admit I am very suprised people still read this ole thing after all these years. I started this Blog years ago (I can't remember how far back) because I was having difficulty with my diagnosis of MS and I began reading someone elses blog and it helped me learn I CAN live a normal life with all this health crap. If reading his blog helped me maybe my venting can help someone else. I hope it has. I don't know. Worst case this venting helps me :)
So update on my conditions in order of least annoying to most annoying
1) Interstitial Cystitis - no flares in the last 4 years except one flare I think 3 years ago. I didn't have to go on meds just watched my diet for a few weeks and it went away.
2) Crohn's - just had my 4th or 5th colonoscopy a few months ago. All was well. Dr said if I hadn't been previously diagnosed with Crohn's they would have never known I had it. I went in due to bleeding and pain which only ended up being an interal hemmorroid
3)Endometriosis - I still take birth control to control the growth. Some months are more painful than others. I just had my second baby 9 months ago and boy do I miss those period free months during pregnancy (that's ALL I miss about pregnancy)
4) Ahh yes good ole MS - well Ms. MS decided to rear her ugly head after my last child was born - go figure the odds are I would have an attack after giving birth and I did. For years my spinal lesion was erased from my MRI's - no signs of it's previous existance. Sans childbirth it came back and brought a friend. Now I have 2 lesions in my spine and they gave me new permanent symptoms - balance and dizziness. My doctor has been stressing his "concern" about the lesions in my spine and said more than once you can have 10+ lesions in the brain and no major issues but it only takes one or two in the spine to really disable you. That said he recommended I go back on an MS drug. I haven't been on an MS drug in what 5 years and back then I only took Avonex for 9 months (Hated it!).
So the research began - I narrowed it down to Copaxone or Tysabri. I went to the drug sponsored lectures to meet others on both drugs. I did research. I even looked up the odds of dying of things to put the risks of Tysabri into prospective. And the winner is.... Tysabri. I just had my first dose 3 weeks ago. Apparently I had an injection reaction (not alergic reaction) because I had a massive headache for 4 days after and was so exhausted. Next time I am supposed to be pre-medicated and I will ask they slow the drip to 2 hours - yes please please make me sit here in bordem longer doctor - there's nothing I like better than to see your overpaid nurses chat about their weekend plans and coupons.
Before during and after the infusion I kept asking myself am I making the right decision? I have 2 kids and a husband to worry about and my decisions affect them now and not just me. I still wonder if I made the right decision but there's no going back now. Its best not to stop Ty after you start - (I learned Ty is the cool kids way of saying tysabri).
Well I have to bid adu (I am a horrible speller and type way too fast to care)...work is calling